Climbing for a Cause: Scaling New Heights to Support Women and Girls with Bleeding Disorders – Haemophilia Association of Mauritius

DESCRIPTION DU PROJET

Edouard will hiking four different GR (Grande Randonnée) trails in France. Each hike will last between 10 to 14 days, with the goal of being as self-sufficient as possible (sleeping in a tent and cooking his own food). He will begin with the Tour Du Mont Blanc (TDM) on July 1st and finish with the GR 21 (Littoral de la Normandie) on August 30th. This journey also includes the GR70 (Sentier de Stevenson) and the GR738 (Traversée de la Belledonne). Covering a total distance of approximately 756 km and a cumulative elevation gain of 28,750 meters in only 46 days, this will be his most significant sports challenge to date.

Edouard will be undertaking this challenge in order to create awareness and raise funds for Women and Girls suffering from bleeding disorders in Mauritius.

For many years, people believed that only men and boys could have symptoms of haemophilia, such as bleeding in general and bleeding into joints, and that women who “carry” the haemophilia gene do not experience bleeding symptoms themselves.

We now know that many women and girls do experience symptoms of haemophilia. As our knowledge about the disorder has increased, so has our understanding of why and how women can be affected. Some women live with their symptoms for years without being diagnosed or even suspecting they have a bleeding disorder. This has a profoundly negative impact on their quality of life.

Bleeding disorders, such as von Willebrand disease (VWD), haemophilia, rare factor deficiencies and platelet function disorders, can affect anyone, but women and girls often face unique challenges due to menstrual and reproductive health issues. Misdiagnosis or delayed diagnosis can lead to severe complications, including anaemia, haemorrhage, and compromised reproductive health.

Historically, these disorders have been perceived as rare in females, leading to gaps in research, diagnosis, and treatment.

OBJECTIFS

This project aims to improve the diagnosis and management of bleeding disorders in women and girls in Mauritius.

These conditions are often underdiagnosed and mismanaged, leading to significant health issues and reduced quality of life. The project will involve developing comprehensive diagnostic protocols, raising awareness among healthcare providers, and creating educational resources for patients and their families.

Project Objectives include:

  1. Improve Diagnostic Accuracy: Develop and implement standardized diagnostic protocols for bleeding disorders in women and girls as well as the purchase of equipment for the diagnosis of VWD.
  2. Increase Awareness: Educate healthcare providers about the prevalence and symptoms of bleeding disorders in this population.
  3. Patient Education: Provide resources and support for patients and their families to better understand and manage their conditions.
  4. Data Collection and Analysis: Establish a database to track diagnostic outcomes, treatment efficacy, and patient satisfaction.

In conclusion, this project will address the significant gap in the diagnosis and management of bleeding disorders in women and girls. By developing standardized protocols, educating healthcare providers, and empowering patients, we aim to improve health outcomes and quality of life for this underserved population.

BÉNÉFICIAIRES

Women and Girls suffering from bleeding disorders in Mauritius

CATÉGORIE

Santé

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Veuillez noter qu'un montant minimum de Rs25 est requis